Most everyone with CF goes through a period of not wanting to do their treatments but it’s not something I’ve seen talked about before outside of the CF community. I appreciated that the book discussed the importance of treatment compliance. For me, one of the hardest parts of living with CF is the fear - knowing what’s possible, that my life will most likely be shortened, that one cold or bad bacteria could change everything - makes me feel like I need to be hyper vigilant about my health. So far my experience with CF looks different from theirs in some very specific ways: I don’t have a feeding tube, I’m not in need of a lung transplant, and I don’t spend a lot of time in the hospital (all of these things of which I am VERY grateful). Stella, Will, and Poe are in what I would call end stage CF, meaning their lungs are at a point that transplant is the only option.
It would be impossible for one book to represent every one of us. Each and every person with CF experiences this disease in our own way, from its severity to our symptoms, to how we feel about the disease and its impact on our lives. And I think that will depend on who you ask. There’s some disagreement within the CF community about whether or not this book is an accurate depiction of CF. What if they could steal back just a little bit of the space their broken lungs have stolen from them? Would five feet apart really be so dangerous if it stops their hearts from breaking too? But suddenly six feet doesn’t feel like safety.
The only way to stay alive is to stay apart. If he so much as breathes on Stella she could lose her spot on the transplant list. Will’s exactly what Stella needs to stay away from. Soon, he’ll turn eighteen and then he’ll be able to unplug all these machines and actually go see the world, not just its hospitals. He couldn’t care less about his treatments, or a fancy new clinical drug trial. The only thing Will Newman wants to be in control of is getting out of this hospital. At this point, what Stella needs to control most is keeping herself away from anyone or anything that might pass along an infection and jeopardize the possibility of a lung transplant. Stella Grant likes to be in control-even though her totally out of control lungs have sent her in and out of the hospital most of her life. In this moving story two teens fall in love with just one minor complication-they can’t get within five feet of each other without risking their lives.Ĭan you love someone you can never touch?
0 kommentar(er)
